mind, body & EDS

| living with a rare, invisible, genetic disease |


January 2016

So these last three weeks have flown by like no other. I will be travelling in only a few days time, on the 6th January, to Washington D.C., USA. My neurosurgery will be on 13th January, so please do keep your fingers and toes crossed for me on that day! I will be staying in the USA till at least mid-February until I am stable enough to return home.

#CareForLaura Campaign Reaches Target!

At the beginning of December 2015, I was told that I am in critical need of lifesaving neurosurgery that could only be done by the world expert in the USA. When my family and I first heard this news, we were not only shocked by the severity and complexity of my damages, but also by the ginormous price tag it came with. How on earth would I be able to raise over £75,000 in just three weeks? Continue reading “#CareForLaura Campaign Reaches Target!”

Eagle Radio Interviews

Eagle News: Laura 

Eagle News: Rochelle (Twin Sister)

Continue reading “Eagle Radio Interviews”

Critical Lifesaving Neurosurgery Appeal

Since being diagnosed with Ehlers Danlos Syndrome (EDS) and PoTS (Postural Tachycardia Syndrome) in 2014, my muscles in my neck have become very unstable. This has led to dislocation/subluxation of my vertebrae, disruption of my spinal cord ligaments, and compression on my cerebellar tonsils and brain stem.  Continue reading “Critical Lifesaving Neurosurgery Appeal”

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