‘Upstream’ is an international global oil and gas newspaper and in this weeks edition published today, Friday 13th May 2016, my appeal of needing to medically crowdfund £300,000 due to my recent diagnosis and surgical treatments needed for my CVST Brain clot, appeared in the “Cuttings” Section. I am so grateful for having the opportunity to have my appeal published globally and spread awareness of my rare genetic disease, Ehlers-Danlos Syndrome & PoTS. A huge thanks to ‘Upstream’ newspaper and to those who made this get published happen!
It reads as follows:
“Dig deep to help Laura
Laura Sylvester is studying for a Masters in Petroleum Geoscience at London’s Imperial College, but the 23-year-old had much more on her mind than this over the last two years, having twice undergone life-saving surgery after being diagnosed with a rare genetic disease.
Now she requires further surgery in the US to remove a blood clot on her brain and needs to raise £300,000 for this procedure. Laura has already raised £175,000 on her YouCaring website https://www.youcaring.com/laura-sylvester-483048 since December 2015, and thus needs another £125,000 to meet her goal.
She was diagnosed in August 2014 with Ehlers Danlos syndrome (EDS) with postural orthostatic tachycardia syndrome. EDS has caused the connective tissue throughout Laura’s body to be extremely stretchy and easily breakable — there is no known cure — affecting her neck muscles, vertebrae, spinal cord and brain stem.
She has already undergone three surgeries — two of which saved her life — but a life-threatening blood clot now needs to be removed.
Laura said the disease has turned her into a relentless fighter.“I am not ready to stop my belief and determination to keep on living and hopefully inspiring others to be strong, no matter what life throws at you,” she said.
Laura is determined to finish her degree, work as a petroleum geoscientist and inspire those who suffer from these genetic diseases. Please dig deep, Upstream readers.”