mind, body & EDS

| living with a rare, invisible, genetic disease |


June 2016

Brain Surgery Success!

I believe in mind over matter. I believe that hurdles in life are meant to be jumped over, not as something to stop us. I believe in miracles and blessings, both great and small.

I am relieved to announce that my brain surgery and insertion of three stents on Tuesday 21st June was a success!

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Stent Surgery Scheduled

DONATE HERE I will be having surgery at 6pm on Tuesday 21st June 2016 by an EDS brain clot specialist in Charlottesville, Virginia. I will be having at least 3 or more stents surgically inserted into my brain (into the Saggtial Sinus & Right Transverse Sinus Veins) and removal of blood clots if they are safe enough to be extracted. Sadly, my Left Transverse Sinus Vein has collapsed in on itself to a point where it is too life-threatening to be fixed and restored (click here to read more). Please keep me in your thoughts and prayers for a safe and successful procedure!

A big step in the right direction…

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Lumbar puncture, road trip to Virginia and tornadoes!

Apologies to you all for not posting an update this last month. It has been a pretty hectic time for me and I have been unwell for several weeks. I am finally feeling a little more myself again and have some news to catch you up on!

Continue reading “Lumbar puncture, road trip to Virginia and tornadoes!”

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