mind, body & EDS

| living with a rare, invisible, genetic disease |


September 2016

Story Gone National!

A huge thanks to Connie Rusk who wrote a fantastic article published  in ‘Get Surrey’ news and mail that was then picked up by the largest UK national press publishing agency the ‘Mirror’ online! 

Tune In & Listen!

Make sure you tune in to 96.4 Eagle Radio tomorrow (20th September) between 6am-12pm. You’ll hear me being interviewed talking about my lifesaving neurosurgeries, how I am settling back at home and efforts to continue my fundraising campaign for past and future surgeries. Help spread awareness of Ehlers-Danlos Syndrome and for me to reach my £300,000 goal! 


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