“Life is tough my darling, but so are you” ✨On my way to USA for my 5th brain surgery…I admit that I am scared of the journey that lies ahead of me. I fear the unknown and unpredictability of living with a chronic disease with no cure. I have been told on numerous occasions that it is a miracle I am still alive with what has been dealt to me. I believe you either take what has been dealt to you and allow it to make you a better person, or you allow it to tear you down. This choice does not belong to fate, but instead to you and belief of hope. I am grateful to all patients, charities and few worldwide specialists offering us medical zebras a beacon of hope. Hope isn’t pretending that troubles don’t exist, but instead the hope it won’t last forever. Pioneering patients like myself risk their lives to advance the research of medicine and our diseases to find solutions for a better quality of life whilst contributing to finding a cure one day so future generations can live freely. I am grateful for this journey as it has given me a stronger purpose in life, not just to live, but to make our invisible visible. Thank you for all your love and support, wish me luck! 💜✈️🇺🇸