I smile because miracles happen every day. I smile because I have survived yet again. I smile because this neurosurgeon has saved my life and has given me another chance to live and pursue my dreams. I smile because even though this invisible disease is incurable, he has set me free from the struggles and life-threatening complications living with a progressively sick brain. I smile because he has given me the ability to believe in hope again, the strength to never give up, to keep fighting and advocating because it’s always worth it. Even though our disease may be rare, we still matter. Whilst so many other doctors worldwide are not willing to believe this epidemic is real, I am eternally grateful to Dr Liu and his team at UVA who do. Even though there are still so many “I don’t knows”, “what if’s” and “I’ve never seen this before”, they are willing to go above and beyond to provide pioneering treatments to complex EDS patients with unsolved brain problems to better our quality of life. You truly are an extraordinary human being, what I like to call a “hero” 💫🙌🏼🇺🇸