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mind, body & EDS

| living with a rare, invisible, genetic disease |

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CareForLaura

Third Critical EDS Neurosurgery Appeal Video

“You gain strength, courage, and confidence by every experience by which you really stop to look fear in the face. You are able to say to yourself, ‘I lived through this horror. I can take the next thing that comes along.'” Eleanor Roosevelt

#CareForLaura Wristbands – Show Your Support

As a “thank you” to those who have helped Laura on her way to a new life, there is, on offer, a token of appreciation in the form of a #CareForLaura wristband.  Wearing one will be a reminder of what has been done, and what continues to be needed, for Laura and her family. If you have not donated yet and wish to contribute to Laura’s Third Critical Neurosurgery (12th April in Washington D.C.), please donate a minimum of £10 to Laura’s medical crowdfunding YouCaring site and you will receive a wristband (please read details below).
Continue reading “#CareForLaura Wristbands – Show Your Support”

My Second Critical Lifesaving EDS Neurosurgery: Tethered Spinal Cord Syndrome 17th February 2016

QUICK UPDATE: Discharged from hosptial

My Second Lifesaving Neurosurgery on Wednesday 17th February went well, even though there were some unexpected additional surgical procedures that were required during the operation to help improve and preserve my quality of life. Unfortunately, I have lost a significant amount of sensory function in my lumbar spine and lower limbs and control of my bladder/bowels. However scary this is for me at the moment, we are hoping these sensory function nerves have not been permanently damaged already (pre-surgery), and that instead it will heal with time – but this is very uncertain. Continue reading “QUICK UPDATE: Discharged from hosptial”

As C.S. Lewis once said,“Hardships often prepare ordinary people for an extraordinary destiny…” Please keep up your positive thoughts, support, donations, messages and prayers for me for my Second Lifesaving Neurosurgery on Wednesday 17th February, only a few days away. To those who are sufferers, I hope to help inspire you to never stop believing in the strength you have! 

Cooke’s Cape May Photography #CareForLaura Fundraiser

A dear family friend of ours, John Cooke, lives in Cape May, New Jersey which is one of the country’s oldest vacation destination resorts, rich with history, beautiful Victorian buildings and award-winning Atlantic beach scenes. Continue reading “Cooke’s Cape May Photography #CareForLaura Fundraiser”

Southampton MedSoc Raises £300 for #CareForLaura Appeal!

My twin sister (Rochelle) is currently attending the University of Southampton studying her first year of Medicine. The university MedSoc (Medicine Society) have been so supportive thus far for my #CareForLaura Appeal. They held an “Open Mic Night” on 9th February Continue reading “Southampton MedSoc Raises £300 for #CareForLaura Appeal!”

Please help by supporting my “Second Critical Lifesaving Neurosurgery” which is scheduled on Wednesday 17th February:

Please Donate on my YouCaring Page

Please Like/Share/Spread the word on Facebook

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