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mind, body & EDS

| living with a rare, invisible, genetic disease |

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Diagnosis

MAY: Ehlers-Danlos Syndrome Awareness Month

May is dedicated to Ehlers-Danlos Syndrome (EDS) Awareness month, when everyone across the world with or without Ehlers-Danlos can come together and help spread awareness to the medical world of this invisible disease, help educate the public, and help donate towards further research to find a cure and understanding for this varied “zebra striped” community. Please click: ‘Ehlers-Danlos UK’ Charity to see how you can help contribute to “making our invisible visible”. With no action, there will be no change. There are still many people who are suffering from EDS but are undiagnosed/misdiagnosed due to lack of awareness in the medical and public community. You can help change this for the better by sharing my story and telling people about what it is. Do something positive to make change happen!

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Post-Op X-Ray Investigations

One of the many clinical investigations I underwent was an x-ray of my lumbar spine which was done on 26th January 2016, just two weeks after my first neurosurgery.
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