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mind, body & EDS

| living with a rare, invisible, genetic disease |

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Jetting Off to D.C. 

Time to jet off back to Washington D.C. for my first official post-op neurosurgeries and brain surgery check-ups! I’ll also be attending some Gala events and will update you on my patient advocate role soon. Keeping my fingers and toes crossed that our 3 weeks stay won’t turn into an unexpected 9 months this time around…Wish me luck! 🇺🇸✈️

#FourMonthCheckUp #Neurosurgeries #BrainSurgery #EDS #SpinalFusions #Chiari #ICH #BrainClot #Stents #HealthJourney

RECENT UPDATE: Possible 3rd Neurosurgery for Laura

Unfortunately, we found out in the follow-up appointment this past week that I have a herniated disc between C6-C7 vertebrae and further instability with overstretched ligaments between C6-T1 vertebrae (due to my EDS). This is causing me significant pain in my neck and will most likely need to be operated on. Continue reading “RECENT UPDATE: Possible 3rd Neurosurgery for Laura”

Finally The Day Arrived: My Time In Hospital January 15th 2015

Morning Walks: Talking about EDS & PoTS

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