Search

mind, body & EDS

| living with a rare, invisible, genetic disease |

Tag

Fundraising

Appeal Published in ‘Upstream’ Global Oil & Gas Newspaper!

‘Upstream’ is an international global oil and gas newspaper and in this weeks edition published today, Friday 13th May 2016, my appeal of needing to medically crowdfund £300,000 due to my recent diagnosis and surgical treatments needed for my CVST Brain clot, appeared in the “Cuttings” Section. I am so grateful for having the opportunity to have my appeal published  globally and spread awareness of my rare genetic disease, Ehlers-Danlos Syndrome & PoTS. A huge thanks to ‘Upstream’ newspaper and to those who made this get published happen!
Continue reading “Appeal Published in ‘Upstream’ Global Oil & Gas Newspaper!”

What an incredible success this concert was raising a grand total of £2105!!! I can’t thank the Frensham Heights Peripatetic Teachers enough for their efforts in putting on fantastic performances from such a range of musical genres – I hear and have seen from some videos. My mother and I wish we could have been there to enjoy such a talented range of musicians.

UPDATE: Raised Goal to £300,000

Due to my recent diagnosis of CVST (Cerebral Left Vein Sinus Thrombosis) Brain Clot, I am needing to undergo further surgical procedures and take medicated anticoagulant injections twice daily. We have needed to raise our goal target to £300,000 because of the unforeseen urgent medical treatment I need which includes: a haematological blood clot study examination, lumbar puncture on Friday May 20th to test the CSF pressure, and most likely brain surgery to remove the clot and put a stent in to prevent any further clots from forming in the future. This total also includes the 3 critical and lifesaving neurosurgeries and post-op rehabilitation expenses. Every little counts. If you are able to help in any way by donating clicking here, sharing my updated story, and helping to spread awareness of EDS & PoTS, then please do so. We would be forever grateful as a family so I can finally be brought home to England to recover further and resume my MSc at Imperial College.

Third Critical EDS Neurosurgery Appeal Video

“You gain strength, courage, and confidence by every experience by which you really stop to look fear in the face. You are able to say to yourself, ‘I lived through this horror. I can take the next thing that comes along.'” Eleanor Roosevelt

THIRD CRITICAL NEUROSURGERY 12th APRIL CONFIRMED

PLEASE SUPPORT BY DONATING HERE. I am in need to medically crowdfund £190,000 for all 3 EDS neurosurgery medical expenses and rehabilitation treatments.

Since recovering from my second surgery for Tethered Spinal Cord Syndrome done on 17th February by specialist EDS neurosurgeon in Washington DC, I have been undergoing further specialist clinical tests and MRI’s for my lower neck. I have been losing sensory function of my left arm throughout this past year and the specialist Upright MRI equipment they have here in the USA has finally revealed that I will unfortunately be needing a 3rd neurosurgery on Tuesday 12th of April 2016 in Washington DC by the same specialist EDS neurosurgeon. Continue reading “THIRD CRITICAL NEUROSURGERY 12th APRIL CONFIRMED”

Charity Chestwax Fundraiser by Imperial RSM for #CareForLaura Appeal

Imperial RSM (Alex McCormac) will be undergoing a fantastic fundraiser of a “Charity Chestwax” on the day of my Second Critical Lifesaving Neurosurgery, Wednesday 17th February! Continue reading “Charity Chestwax Fundraiser by Imperial RSM for #CareForLaura Appeal”

Cooke’s Cape May Photography #CareForLaura Fundraiser

A dear family friend of ours, John Cooke, lives in Cape May, New Jersey which is one of the country’s oldest vacation destination resorts, rich with history, beautiful Victorian buildings and award-winning Atlantic beach scenes. Continue reading “Cooke’s Cape May Photography #CareForLaura Fundraiser”

Second Critical Lifesaving Neurosurgery Appeal Video

Southampton MedSoc Raises £300 for #CareForLaura Appeal!

My twin sister (Rochelle) is currently attending the University of Southampton studying her first year of Medicine. The university MedSoc (Medicine Society) have been so supportive thus far for my #CareForLaura Appeal. They held an “Open Mic Night” on 9th February Continue reading “Southampton MedSoc Raises £300 for #CareForLaura Appeal!”

Blog at WordPress.com.

Up ↑