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mind, body & EDS

| living with a rare, invisible, genetic disease |

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Hypermobility

“Hitting the wall” – London Marathon

I believe that there is power in suffering and chronic illness because it’s in these times of pure vulnerability that we learn how to overcome what seems the ‘impossible’, not just for ourselves but for others too.

By experiencing our own pain of “hitting the wall”, we can understand and care for the pain of others. In our chronic illness journeys, we encourage each other to keep fighting, to continue learning, to never give up – but we rarely talk about “the wall”.

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MAY: Ehlers-Danlos Syndrome Awareness Month

May is dedicated to Ehlers-Danlos Syndrome (EDS) Awareness month, when everyone across the world with or without Ehlers-Danlos can come together and help spread awareness to the medical world of this invisible disease, help educate the public, and help donate towards further research to find a cure and understanding for this varied “zebra striped” community. Please click: ‘Ehlers-Danlos UK’ Charity to see how you can help contribute to “making our invisible visible”. With no action, there will be no change. There are still many people who are suffering from EDS but are undiagnosed/misdiagnosed due to lack of awareness in the medical and public community. You can help change this for the better by sharing my story and telling people about what it is. Do something positive to make change happen!

Continue reading “MAY: Ehlers-Danlos Syndrome Awareness Month”

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