mind, body & EDS

| living with a rare, invisible, genetic disease |



My Hero: The neurosurgeon who saved my life

It’s about time for you all to recognise and honour the most remarkable talented man, who I can call “my hero”:  Dr. Fraser Henderson. If it wasn’t for Dr. Henderson’s extraordinary and exceptional neurosurgery skills, I would have not made it alive through the neurosurgery Continue reading “My Hero: The neurosurgeon who saved my life”

Critical Lifesaving Neurosurgery Appeal

Since being diagnosed with Ehlers Danlos Syndrome (EDS) and PoTS (Postural Tachycardia Syndrome) in 2014, my muscles in my neck have become very unstable. This has led to dislocation/subluxation of my vertebrae, disruption of my spinal cord ligaments, and compression on my cerebellar tonsils and brain stem.  Continue reading “Critical Lifesaving Neurosurgery Appeal”

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