mind, body & EDS

| living with a rare, invisible, genetic disease |





Since announcing the success of my complex lifesaving craniocervical fusion neurosurgery on the 13th January in Washington D.C., I have been undergoing further clinical tests, X-rays and MRIs of my lumbar spine. The reason for this is that I have been experiencing differently-sourced neurological symptoms that are not linked with my first surgery or neck injuries.

My Hero: The neurosurgeon who saved my life

It’s about time for you all to recognise and honour the most remarkable talented man, who I can call “my hero”:  Dr. Fraser Henderson. If it wasn’t for Dr. Henderson’s extraordinary and exceptional neurosurgery skills, I would have not made it alive through the neurosurgery Continue reading “My Hero: The neurosurgeon who saved my life”

Finally The Day Arrived: My Time In Hospital January 15th 2015

Reunited with my twin sister

“She is your mirror shining back at you with a world of possibilities. She is your witness who sees you at your worst and best but loves you anyway.  She is your partner in crime, your midnight companion, someone who knows when you are smiling, even in the dark. She is your twin sister”

Continue reading “Reunited with my twin sister”

Lifesaving Neurosurgery Success!

I am relieved to announce that my neurosurgery that took place on Wednesday 13th January at 7:30am was successful, even though there were many unexpected serious life-threatening complications that occurred during the five hour operation. The specialist neurosurgeon expressed that he was amazed how I even made it alive here to the USA Continue reading “Lifesaving Neurosurgery Success!”

Morning Walks: Talking about EDS & PoTS

#CareForLaura Campaign Reaches Target!

At the beginning of December 2015, I was told that I am in critical need of lifesaving neurosurgery that could only be done by the world expert in the USA. When my family and I first heard this news, we were not only shocked by the severity and complexity of my damages, but also by the ginormous price tag it came with. How on earth would I be able to raise over £75,000 in just three weeks? Continue reading “#CareForLaura Campaign Reaches Target!”

Eagle Radio Interviews

Eagle News: Laura 

Eagle News: Rochelle (Twin Sister)

Continue reading “Eagle Radio Interviews”

Critical Lifesaving Neurosurgery Appeal

Since being diagnosed with Ehlers Danlos Syndrome (EDS) and PoTS (Postural Tachycardia Syndrome) in 2014, my muscles in my neck have become very unstable. This has led to dislocation/subluxation of my vertebrae, disruption of my spinal cord ligaments, and compression on my cerebellar tonsils and brain stem.  Continue reading “Critical Lifesaving Neurosurgery Appeal”

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