mind, body & EDS

| living with a rare, invisible, genetic disease |


Second Neurosurgery

QUICK UPDATE: Discharged from hosptial

My Second Lifesaving Neurosurgery on Wednesday 17th February went well, even though there were some unexpected additional surgical procedures that were required during the operation to help improve and preserve my quality of life. Unfortunately, I have lost a significant amount of sensory function in my lumbar spine and lower limbs and control of my bladder/bowels. However scary this is for me at the moment, we are hoping these sensory function nerves have not been permanently damaged already (pre-surgery), and that instead it will heal with time – but this is very uncertain. Continue reading “QUICK UPDATE: Discharged from hosptial”

Charity Chestwax Fundraiser by Imperial RSM for #CareForLaura Appeal

Imperial RSM (Alex McCormac) will be undergoing a fantastic fundraiser of a “Charity Chestwax” on the day of my Second Critical Lifesaving Neurosurgery, Wednesday 17th February! Continue reading “Charity Chestwax Fundraiser by Imperial RSM for #CareForLaura Appeal”

Second Critical Lifesaving Neurosurgery Appeal Video

Southampton MedSoc Raises £300 for #CareForLaura Appeal!

My twin sister (Rochelle) is currently attending the University of Southampton studying her first year of Medicine. The university MedSoc (Medicine Society) have been so supportive thus far for my #CareForLaura Appeal. They held an “Open Mic Night” on 9th February Continue reading “Southampton MedSoc Raises £300 for #CareForLaura Appeal!”

Everyone, tune in to listen to 96.4 Eagle Radio from 6am (GMT) tomorrow (Monday 8th Feb) for ALL DAY coverage of my “Second Critical Lifesaving Neurosurgery” fundraising appeal interviews! So thankful to Eagle Radio helping spread awareness of my rare genetic disease Ehlers Danlos Syndrome and my fundraising efforts! 


Post-Op X-Ray Investigations

One of the many clinical investigations I underwent was an x-ray of my lumbar spine which was done on 26th January 2016, just two weeks after my first neurosurgery.
Continue reading “Post-Op X-Ray Investigations”

Made Front Page of the Farnham Herald!

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Since announcing the success of my complex lifesaving craniocervical fusion neurosurgery on the 13th January in Washington D.C., I have been undergoing further clinical tests, X-rays and MRIs of my lumbar spine. The reason for this is that I have been experiencing differently-sourced neurological symptoms that are not linked with my first surgery or neck injuries.

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