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mind, body & EDS

| living with a rare, invisible, genetic disease |

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Surgery

“Hitting the wall” – London Marathon

I believe that there is power in suffering and chronic illness because it’s in these times of pure vulnerability that we learn how to overcome what seems the ‘impossible’, not just for ourselves but for others too.

By experiencing our own pain of “hitting the wall”, we can understand and care for the pain of others. In our chronic illness journeys, we encourage each other to keep fighting, to continue learning, to never give up – but we rarely talk about “the wall”.

Continue reading ““Hitting the wall” – London Marathon”

Dealing with Pre & Post Surgery Anxiety

Having a total of 5 surgical procedures all within a 6 month period (3 major neurosurgeries, a lumber puncture and brain surgery), there is no doubt that both my mind and body have suffered from severe anxiety and stress. Prior to having all these surgeries, I had some experience when having bilateral knee surgery (both knees done at the same time) in 2012. So I thought going through surgery once before meant I would be as cool and calm as a cucumber – but I can honestly say that each surgery was a completely different experience and is just as nerve-wracking.

Continue reading “Dealing with Pre & Post Surgery Anxiety”

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