mind, body & EDS

| living with a rare, invisible, genetic disease |



Jetting Off to D.C. 

Time to jet off back to Washington D.C. for my first official post-op neurosurgeries and brain surgery check-ups! I’ll also be attending some Gala events and will update you on my patient advocate role soon. Keeping my fingers and toes crossed that our 3 weeks stay won’t turn into an unexpected 9 months this time around…Wish me luck! 🇺🇸✈️

#FourMonthCheckUp #Neurosurgeries #BrainSurgery #EDS #SpinalFusions #Chiari #ICH #BrainClot #Stents #HealthJourney

Discovering D.C.

After a nine hour flight full of turbulences on Wednesday, we (my mother Jayne and I) have finally settled and ‘found our feet’ on the other side of the ‘pond’. Today was our first day of being typical tourists in Washington D.C. Continue reading “Discovering D.C.”

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